Based on the experience of 2 physicians from physiatry and developmental pediatrics, this article proposes a framework for improving care and outcomes for children with spina bifida. The combined skills…
This article describes the utility of a spina bifida-specific electronic medical record (SB EMR). Standardization and pooling of data through the SB EMR will facilitate development of increased knowledge for…
The Life Course Model for patients, families, caregivers, teachers, and clinicians was developed with support by the National Spina Bifida Program, National Center on Birth Defects and Developmental Disabilities, Centers…
An overview of the importance of “listening to consumers” is the primary theme of this article. This article features perspectives of consumers as to their transition experiences with descriptions of…
This article focuses on how the Life Course Model Web site can help family members build on the strengths of individuals with spina bifida and address areas of difficulty. A…
This article outlines and summarizes the rationale and the working process that was undertaken by the National Spina Bifida Program to address the issues of transitioning throughout the life course…
The transition of youth with spina bifida into adulthood is an exciting opportunity to branch out, explore and participate in community, and reach higher levels of independence. The Life Course…
Because children with chronic conditions, such as spina bifida, have grown up into adults in increasing numbers, they and their families have increasingly questioned whether they have reached their full…
Spina bifida is the most common of the neural tube defects, which include myelomeningocele, encephalocele, and anencephaly. Spina bifida is a complex and multisystem birth defect, in which one or…
Nevi or nests of cells may be made up of a variety of cell types. The cell types that live in the epidermis include epidermal cells or keratinocytes, sebaceous glands,…
