Categories of social media Example Social networks Facebook LinkedIn Weblogs/microblogs Twitter CaringBridge CaringPages Content communities YouTube Pinterest Instagram Collaborative projects Wikipedia Podcasts Cancer. Net CDC Cancer Forum/message boards Yahoo! Answers…
Wondered whether God had abandoned me [felt abandoned] Felt punished by God for my lack of devotion [felt responsible for own predicament] Wondered what I did for God to punish…
Practice Examples Whole medical systems Naturopathy, Ayurveda, traditional Chinese medicine Mind–body medicine Meditation, prayer, mental healing, creative arts therapy (art, music, dance, writing) Biologically based practices Dietary supplements, botanical medicine…
Personal factors Disease factors Physical factors Female gender Brain tumor or CNS-directed therapy Poor health status Preexisting conditions—mental illness, functional limits Prolonged or intense treatments (e.g., bone marrow transplant) Chronic…
Assessment domain Salient assessment factors Examples of interview questions Examples of measures tailored to individual patient needs HSCT knowledge (informed consent/assent) HSCT procedure Benefits vs risks Decision making/voluntariness Alternative treatment…
Family risk factors Promoting protective factors Closed communication, e.g., family members are not kept informed and there are limited opportunities for involvement and discussion in decision-making Encourage open communication among…
Disease/treatment factors Cranial radiation Presence and location of a brain tumor Surgical resection of a brain tumor Chemotherapies known to be associated with neurotoxicity (neurocognitive, neuropathy, hearing loss, etc.) Methotrexate…
Ingredients and descriptions Plasma (corn syrup): makes our body’s blood, like a workshop Red blood cells (dry kidney beans or red hot candies): give our bodies energy White blood cells…
Fig. 9.1 Ecological systems theory Because the needs of families of children with cancer are ongoing and complex, research and clinical care is optimized when also considered within a life-span…
The provision of written information to read and review independently and to reference, as needed (e.g., a summary of information discussed with the medical team, medication teaching sheets, published research…
