Advocacy: Helping Others Understand What Children with Cancer Need
Individual advocacy Always expressing my thoughts and feelings to everyone who is involved in any type of care that is provided to my child Never settling Putting your own needs…
PEDIATRICS
In Their Own Voices: Experiences of Children and Adolescents with Cancer
© Springer International Publishing Switzerland 2016Annah N. Abrams, Anna C. Muriel and Lori Wiener (eds.)Pediatric Psychosocial Oncology: Textbook for Multidisciplinary Care10.1007/978-3-319-21374-3_23 23. In Their Own Voices: Experiences of Children and Adolescents with Cancer Michael H. Tang1 (1) Department…
Parents’ Perspective on the Role of Psychosocial Care in Pediatric Oncology
© Springer International Publishing Switzerland 2016Annah N. Abrams, Anna C. Muriel and Lori Wiener (eds.)Pediatric Psychosocial Oncology: Textbook for Multidisciplinary Care10.1007/978-3-319-21374-3_22 22. Parents’ Perspective on the Role of Psychosocial Care in Pediatric Oncology Victoria A. Sardi-Brown1 and Peter J. Brown1 …
Self-Care and Sustainability for Pediatric Oncology Providers
© Springer International Publishing Switzerland 2016Annah N. Abrams, Anna C. Muriel and Lori Wiener (eds.)Pediatric Psychosocial Oncology: Textbook for Multidisciplinary Care10.1007/978-3-319-21374-3_21 21. Self-Care and Sustainability for Pediatric Oncology Providers Barbara L. Jones1 and Stacy S. Remke2 (1) School of Social…
eHealth and mHealth in Pediatric Oncology
Areas of use Authors Year Benefits Limitations Adherence 1. Rohan et al. 2. Kato et al. 2013 2008 Improves medication adherence Provides real-time objective data Assists family with organizing medications…
Social Media Use in Pediatric Oncology: Tweets, Blogs, and Boundaries
Categories of social media Example Social networks Facebook LinkedIn Weblogs/microblogs Twitter CaringBridge CaringPages Content communities YouTube Pinterest Instagram Collaborative projects Wikipedia Podcasts Cancer. Net CDC Cancer Forum/message boards Yahoo! Answers…
Spiritual Care in Pediatric Oncology
Wondered whether God had abandoned me [felt abandoned] Felt punished by God for my lack of devotion [felt responsible for own predicament] Wondered what I did for God to punish…
Integrative Care in Pediatric Oncology
Practice Examples Whole medical systems Naturopathy, Ayurveda, traditional Chinese medicine Mind–body medicine Meditation, prayer, mental healing, creative arts therapy (art, music, dance, writing) Biologically based practices Dietary supplements, botanical medicine…
Psychosocial Care for Pediatric Cancer Survivors
Personal factors Disease factors Physical factors Female gender Brain tumor or CNS-directed therapy Poor health status Preexisting conditions—mental illness, functional limits Prolonged or intense treatments (e.g., bone marrow transplant) Chronic…
Pediatric Hematopoietic Stem Cell Transplantation: Psychosocial Assessment and Care
Assessment domain Salient assessment factors Examples of interview questions Examples of measures tailored to individual patient needs HSCT knowledge (informed consent/assent) HSCT procedure Benefits vs risks Decision making/voluntariness Alternative treatment…
