Inherited Life-Threatening Illnesses
38 Inherited Life-Threatening Illnesses Sarah Dugan, Renee Temme Facing the Future Every journey begins With but a small step. And every day is a chance For a new, small step…
The Language of Pediatric Palliative Care
1 The Language of Pediatric Palliative Care Joanne Wolfe, Pamela S. Hinds, Barbara M. Sourkes, With Contributions from All Chapter Authors Words are deeds. The words we hear May revolutionize…
The Evidence Base
9 The Evidence Base Deborah A. Lafond, Nancy Hutton If we listen closely, children who are dying and their families will tell us everything we need to know to care…
Organ Donation
24 Organ Donation Amy Durall The world is round and the place which may seem like the end may also be the beginning. —Ivy Baker Priest Organ transplantation is a…
Program Development and Implementation
8 Program Development and Implementation Robin Kramer, Stacy S. Remke, Sally Sehring Culture does not change because we desire to change it. Culture changes when the organization is transformed; the…
Resuscitation
22 Resuscitation Justin N. Baker The kid is a full code. We can’t get the parents to sign a Do Not Resuscitate (DNR) order. They just don’t get it. ……
Introducing Home-Based Palliative Care and Hospice
21 Introducing Home-Based Palliative Care and Hospice Ross M. Hays, Leslie Adams, Michelle Frost Only connect. That was the whole of her sermon. Only connect the prose and the passion,…
Introducing Palliative Care
20 Introducing Palliative Care Joetta Deswarte Wallace, Linda Muro-Garcia Hope is the thing with feathers that perches on the soul and sings the tune, without the words, and never stops…
Relationships with the Community: Palliative Care and Beyond
17 Relationships with the Community Palliative Care and Beyond David M. Steinhorn, Richard Goldstein, Stacy F. Orloff This chapter is intended to provide the reader new to pediatric palliative care…
