Resources Chapter

© Springer International Publishing Switzerland 2016
Annah N. Abrams, Anna C. Muriel and Lori Wiener (eds.)Pediatric Psychosocial Oncology: Textbook for Multidisciplinary Care10.1007/978-3-319-21374-3_25

25. Resources Chapter

Sima Zadeh1  , Mitch Golant2  , Farya Phillips3   and Barbara L. Jones4  
(1)
Pediatric Oncology Branch, National Institutes of Health, National Cancer Institute, 10 Center Drive, Bldg. 10, 1H-PEDS, Room 1-5460, Bethesda, MD 20892, USA
(2)
Cancer Support Community, 1050 17th Street NW, Suite 500, Washington, DC, 20036, USA
(3)
School of Social Work, The University of Texas at Austin, 1925 San Jacinto, D3500, Austin, TX 78712, USA
(4)
School of Social Work, University of Texas at Austin, 1925 San Jacinto Blvd, Mail Stop D3500, Austin, TX 78712, USA
 
 
Sima Zadeh (Corresponding author)
Email: zadehsl@mail.nih.gov
 
Mitch Golant
Email: mitch@cancersupportcommunity.org
 
Farya Phillips
Email: Farya@utexas.edu
 
Barbara L. Jones
Email: barbarajones@mail.utexas.edu
Families facing a cancer diagnosis can gather information and find supportive resources in numerous ways. Organizations dedicated to specific cancer diagnoses can be a useful resource to increase a family’s initial understanding of the disease. Books and videos geared toward each member of the family are also widely available and useful for providing information or support in a developmentally appropriate and sensitive manner. When working with pediatric oncology patients and their families, guiding them through the many ways in which they can access information on disease and treatment options, supportive services, financial assistance, survivorship, and end-of-life care can be invaluable.
*While we tried to include all potentially useful resources, this list is not exhaustive. New and additional resources may be available.

Books/Articles for Children with Cancer and Their Families

Children

  • Because…Someone I Love Has Cancer (American Cancer Society) Kids’ activity book
  • Chemo, Craziness, and Comfort: My Book About Childhood Cancer by Nancy Keene, Candlelighters Childhood Cancer Foundation, 2002
  • Dear Bruno by Alice Trillin, New Press, 1996.
  • Franklin Goes To The Hospital by Paulette Bourgeois. Scholastic, 2011
  • Healing Images for Children: Teaching Relaxation and Guided Imagery to Children Facing Cancer and Other Serious Illnesses by Nancy C. Klein. Inner Coaching, 2001
  • Kathy’s Hats: A Story of Hope by Trudy Krisher, Nadine Bernard Westcott (illustrator). Albert Whitman and Company, 1992
  • Little Tree: A Story for Children with Serious Medical Problems by Joyce C. Mills, Magination Press, 2003
  • Living Well With My Serious Illness by Marge Eaton Heegaard. Fairview Press, 2003
  • My Body Needs Help by Annette Abrams, Tenley Circle Press, 2011
  • The Amazing Hannah, Look at Everything I Can Do! by Amy Klett, Candlelighters Childhood Cancer Foundation, 2002
  • The Hospital Scares Me by Paula Z. Hogan and Kirk Hogan, Raintree Steck-Vaughn Publishers, 1995
  • The Sandbox King by Susanne M. Swanson, Writer’s Press, 1995
  • The Jester Has Lost His Jingle by David Saltzman. Jester Books, 1995
  • This is My World (workbook) by Sima Zadeh and Lori Wiener. National Cancer Institute and the National Institute of Mental Health, 2010 https://​ccr.​cancer.​gov/​Pediatric-Oncology-Branch-psychosocial-education
  • What About Me? When Brothers and Sisters Get Sick by Allan Peterkin, Magination Press, 1992

Teens

  • It’s Not About the Bike: My Journey Back to Life by Lance Armstrong and Sally Jenkins. Berkley Trade, 2001
  • Teens with the Courage to Give: Young People Who Triumphed Over Tragedy and Volunteered to Make a Difference by Jackie Waldman and Steven A. Culbertson. Conari Press, 2000
  • The Bald-Headed Princess: Cancer, Chemo, and Courage by Maribeth Ditmars. Magination Press, 2010

Parents/Adults

  • Caregiver’s Guide for Bone Marrow/Stem Cell Transplant (Practical Perspectives) by Melanie Goldish, 2003
  • Childhood Brain & Spinal Cord Tumors: A Guide for Families, Friends and Caregivers by Shiminski-Maher, Cullen, Sansalone, O’Reilly & Associates, 2002
  • Children Diagnosed with Cancer: Returning to school. The American Cancer Society, 2011
  • Children with Cancer: Effects and Educational Implications by Sarah McDougal, 1997
  • Educating the Child with Cancer: A Guide for Parents and Teachers by Nancy Keene, American Childhood Cancer Organization, 2003
  • Learning and living with cancer: Advocating for your child’s educational needs, Leukemia and Lymphoma Society, 2005.
  • Living With Childhood Cancer: A Practical Guide to Help Families Cope by Leigh A. Woznick and Carol D. Goodheart. American Psychological Association, 2001.
  • Shelter from the Storm: Caring for a Child with a Life-Threatening Condition by Joanne Hilden and Daniel Tobin, with Karen Lindsey. Perseus Publishing, 2002
  • The Human Side of Cancer: Living with Hope, Coping with Uncertainty by Jimmie Holland and Sheldon Lewis. Harper Perennial, 2001
  • Therapeutic Activities for Children and Teens Coping with Health Issues by Robyn Hart and Judy Rollins. Wiley, 2011
  • Young People with Cancer. A Handbook for Parents. NIH/NCI, 2001

Siblings

  • Brothers and Sisters Together: A workbook for siblings of siblings who are sick by Lori Wiener, 2006 (Also available in Spanish) https://​ccr.​cancer.​gov/​Pediatric-Oncology-Branch-psychosocial-education
  • Drums, Girls and Dangerous Pie by Jordan Sonnenblick. DayBue Publishing, 2004 (fiction)
  • Hey, What about Me?: A Personal Journal for Teens Whose Brother or Sister Has Cancer by Pam Ganz, SuperSibs!
  • Oliver’s Story: For ‘sibs’ of kids with cancer by Michael Dodd, Candlelighters Childhood Cancer Foundation, 2004
  • SuperSibs! Parent Guide for Siblings of Children with Cancer, SuperSibs!
  • When Your Brother or Sister Has Cancer: A Guide for Teens Paperback by The National Cancer Institute, 2012

Books to Share with Other Students in the Classroom

  • Jacob has Cancer: His Friends Want to Help by Heather Cooper, American Cancer Society, 2012
  • The Famous Hat by Kate Gaynor, Special Stories, 2008
  • Taking Cancer to School by Kim Gosselin, JayJo Books, 2001
  • The Amazing Hannah, Look at Everything I Can Do! by Amy Klett, Candlelighters Childhood Cancer Foundation, 2002
  • The Long and Short of It: A Tale About Hair by Barbara Meyers and Lydia Criss Mays, American Cancer Society, 2011
  • Why, Charlie Brown, Why by Charlie Schultz, Ballentine Books, 2002

Resources for Teachers

  • Cancervive Teacher’s Guide for Kids with Cancer by Susan Nessim & Ernie Katz, Cancervive, 2000
  • Children with Cancer in the Classroom by Virginia Peckman, Teaching Exceptional Children, 1993
  • Pupils with Cancer: A Guide for Teachers. The Royal Marsden NHS Foundation Trust and the Specialist Schools and Academies Trust, 2008
  • Dealing with cancer in the classroom: The teacher’s role and responsibilities by C. Spinnelli, Teaching Exceptional Children, 2004

Cancer Survivors

  • Can Survive: Reclaiming Your Life After Cancer by Susan Nessim & Judith Ellis, Houghton Mifflin, 2000
  • Childhood Cancer Survivors: A Practical Guide to Your Future, 2nd Edition, by Kathy Ruccione, Nancy Keene, & Wendy Hobbie, O’Reilly Media, Inc, 2006
  • Childhood Cancer Survivorship: Improving Care and Quality of Life by the Institute of Medicine, National Cancer Policy Board, National Academies Press, 2003

Grief and Loss

  • Am I Still a Sister? by Alicia M Sims, Big A & Company, 1986
  • Gentle Willow: A Story for Children About Dying by Joyce C. Mills, Magination Press, 2003
  • Helping Teens Work Through Grief, 2nd Edition, by Mary Kelly Perschy, Routledge, 2004
  • Someday Heaven by Larry Libby, Multnomah Publishers, Inc., 2001
  • The Grieving Teen: A Guide for Teenagers and Their Friends by Helen Fitzgerald, Fireside, 2000
  • Waterbugs and Dragonflies by Doris Stickney, The Pilgrim Press, 1982

Videos/Websites

Cancer Camps in North America

Scholarship Information

Scholarships for Siblings

Organizations in the U.S. Providing Information and Education

All Cancers

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Oct 31, 2016 | Posted by in PEDIATRICS | Comments Off on Resources Chapter

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