Children with complex chronic medical conditions are at risk for significant distress during multiple points in their life. Pediatric palliative care can meaningfully assist in providing support to the child and family throughout their complex care, managing distressing symptoms, anticipating future decision points, and helping the child and family to thrive in their local community.
Key points
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Children with complex chronic conditions and life-threatening conditions benefit from a dynamic pediatric palliative care team to adapt to the child and family’s evolving needs throughout their illness trajectory.
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Children with complex chronic conditions and life-threatening conditions have a subset of distressing symptoms, which can be managed through careful diagnosis and treatment.
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Ongoing dialogue with families of children with complex chronic conditions can prepare for anticipated forks in the road throughout the child’s disease trajectory.
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The spiritual and psychosocial care of children with complex chronic conditions and their families takes on special dimensions given the lifelong nature of the child’s life-threatening condition.
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