Medical system

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Medical system


DAWN B. OAKLEY and KATHLEEN BAUER






Medical care settings


A medical system includes many team members, including children, families, specialists, generalists, nurses, physicians, physical therapists, child life or therapeutic activity therapists, speech and language pathologists, and occupational therapists. A pediatric medical care system comprises a group of individuals (professional, paraprofessional, and nonprofessional) who form a complex and unified whole dedicated to caring for children who are ill (Box 3-1).9 This environment may initially be overwhelming to an entry level OT practitioner.



BOX 3-1   Key Pediatric Medical Terms


Cardiologist


A physician specializing in the treatment of heart disease




















Adapted from Slee V, Slee D: Slee’s health care terms, ed 3, St Paul, MN, 1996, Tringa Press; Thomas CL, editor: Taber’s cyclopedic medical dictionary, ed 18, Philadelphia, 1997, FA Davis.


Comprehensive pediatric medical care occurs over a continuum of various settings, including: neonatal intensive care unit (NICU), step-down nursery or pediatric intensive care unit (PICU), subacute setting, the home, or a residential (long-term care) facility.



Neonatal intensive care unit


The NICU is needed for infants after complicated births. The goal of the NICU team is to address the acute or extremely severe symptoms or conditions of such infants so that they can become physiologically stable (i.e., maintain a stable body temperature, heart rate, and respiratory rate).


The medical team closely monitors the medical status of NICU clients. A neonatologist serves as the leader of the NICU team (Figure 3-1). In addition to conducting a neonatal assessment, the neonatologist consults with the other professionals on the medical team about the specific needs of the infant. The following conditions may indicate that an infant should be admitted to the NICU:




When presented with an infant who has one or more of these conditions, additional medical team members take part in consultations and provide further examinations. Pulmonologists (lung specialists), cardiologists (heart specialists), gastroenterologists (digestive specialists), neurologists (brain specialists), social workers, and respiratory therapists are some of the additional medical team members who may be needed to address the needs of infants in the NICU.



Pediatric intensive care unit


When the medical team determines that the infant has met certain physiologic requirements, the infant is moved out of the NICU. If the infant still requires some form of hospital-based medical care, the infant can be transferred to a step-down nursery or pediatric intensive care unit (PICU) (Figure 3-2). In addition to continuing to address the infant’s acute symptoms, the goals of the PICU team are to attempt to wean the infant from external sources of medical support and, when applicable, provide sensorimotor stimulation. As the infant is moved from one unit to another, additional team members may be required, and the services of certain other members may no longer be needed. For example, in the PICU, the infant’s medical team leader is no longer a neonatologist; it is a pediatrician.




Subacute setting


As an infant’s condition improves, he or she may no longer require the level of care provided in a PICU; however, the infant may not yet be ready to be discharged home. In this instance, the infant may be transferred to a subacute setting (Figure 3-3). The medical needs of the infant, as well as the desires of the infant’s primary caregivers affect this decision. The goals of the subacute team are to provide appropriate medical treatment while continuing to wean the infant off medical supports and carrying out development-based therapeutic interventions.




Home


As an infant’s status improves, discharge plans are formulated. The issue of where the infant goes after being discharged is discussed with the infant’s primary caregivers. Going home is the ultimate goal for infants in acute, step-down nursery, and subacute settings. Once at home, the goals are to facilitate caregiver and infant bonding and promote the continued acquisition of developmentally appropriate skills.


The infants receive medical care through scheduled clinic and outpatient hospital-based visits (Figure 3-4). The coordination of an infant’s nursing, therapy, and equipment needs are often transitioned to a community-based home care agency. These agencies monitor clients’ medical needs and coordinate home-based therapeutic services. The age of the client determines where the services are provided. Infants and young children usually receive home-based services. As children mature, their services may remain at home, or they may transition to an outpatient clinic or community-based early intervention (EI) or Early Head Start setting.







Models of medical care


In addition to the practice setting, occupational therapy (OT) practitioners need to be aware of the model of medical care under which services are being provided. The increased number of uninsured or underinsured children and families has resulted in the expansion of medical care practice outside of the more traditional arena (i.e., inpatient, center-based care). The models of pediatric service delivery have been broadened to include the stages of medical service provision. Federal programs, such as early interventions, involve the primary care physician as a vital member of the treatment team. In addition, therapy, nutrition, social work, and other services are provided under this federally mandated (state-governed) program to assist with meeting first-level (primary) medical care needs. One of the components of a primary medical care model is education. Pediatric primary care is strongly grounded in the understanding that caregivers must receive assistance in order to recognize the need for routine and follow-up medical care. Practices such as immunizations, vaccinations, regularly scheduled checkups, and ongoing monitoring of chronic conditions are all examples of strategies that are used under the primary care model to promote and support health in children. All medical personnel who provide services under this model of care are responsible for participating in the educational process.


The second-level (secondary) medical care model involves the follow-up that occurs once a child has become ill. In these instances, the caregiver receives guidelines to prevent further contamination of the child or others within the household or community. This level of medical care involves caregiver education, focusing on caregiver recognition of the importance of adherence to guidelines regarding care, sanitation, dispensing medication, and observation for signs of improvement or worsening of a condition. This level of care is more intense than in the primary care model. The increased level of medical care is provided to prevent the necessity of tertiary medical care.


The third-level (tertiary) medical care model involves the need for hospitalization. At this point in the medical care continuum, serious concerns have arisen regarding involvement of the child’s body system(s) and that additional body systems will be affected by primary or secondary causes associated with the child’s illness. This model continues to involve caregiver education; however, a greater level of responsibility for the child’s recuperation is dependent on interventions provided by medical personnel.


The next section of this chapter focuses on a discussion of the continuum of medical care service options. The information gained from medical care models aids in the development of the pediatric knowledge base necessary to provide medical-based interventions.




Case study


Daniel was delivered by a cesarean section with vacuum extraction because of fetal distress after 33 weeks of gestation. At birth, he was limp and cyanotic, with a heart rate of less than 100 bpm. No respiratory effort was noted at birth. Daniel’s birth weight was 200 g. He required mechanical ventilation for the first 3 days of life. Daniel was weaned to nasal continuous positive airway pressure (CPAP) from days 3 to 18. He was intubated again on day 25 for gastrostomy tube placement.


Three days after the gastrostomy tube placement, Daniel was transferred to a step-down nursery. After the transfer, consultation requests were made to the staff geneticist, a physiatrist, and rehabilitation services.


After Daniel spent 30 days in the step-down nursery, the medical team and his parents determined that he should be discharged and transferred to a subacute facility. The responsibility for Daniel’s treatment was then assumed by the subacute facility.


After Daniel spent 1 year as an inpatient at the subacute facility, the medical team and Daniel’s parents decided that he was ready to be discharged and return home. Daniel was transferred from inpatient, medical-based care to outpatient, home-based care. As noted in the case study, when a pregnant mother has an emergency delivery, some degree of pediatric medical care is often required to treat birth-related trauma to the infant. In addition, children may need pediatric medical care for accidental injuries, neurologic and musculoskeletal traumas, and complications resulting from genetic defects.



Role of occupational therapy in the pediatric medical system




The prolonged hospitalization of an infant or child is not a normal event. A hospitalization of more than a few days puts a typical child at risk for some degree of developmental delay. For example, to develop meaningful social and emotional bonds, infants and children need to be comforted and held by other human beings. Children and infants who are hospitalized typically are not held as often as those who are not in a hospital. These children and infants may have difficulty developing the social and emotional skills needed for successful interactions with members of their families and their peers.


The perceived or actual presence of developmental delays warrants the provision of OT and other rehabilitative services. Perceived deficits are those that may not yet be present but are known to be associated with a particular condition, such as Down syndrome. Perceived deficits can also be temporary developmental delays resulting from atypical experiences and events. The fundamental principle of OT is to promote optimal performance in each of the areas of occupation: play/leisure, activities of daily living (ADLs), instrumental activities of daily living (IADLs), social participation, and education. Pediatric medical-based OT practitioners use play activities to facilitate the acquisition of age-appropriate developmental skills (e.g., gross motor, fine motor, cognitive).



Role of the occupational therapy practitioner


Medical-based OT practitioners are either occupational therapists or occupational therapy assistants (OTAs). Occupational therapists are responsible for providing the overall framework for medical-based services. Collaboration between OT practitioners is essential and is facilitated by the OTA’s knowledge of the occupational therapist’s responsibilities, which include conducting screenings and evaluations, formulating and carrying out daily intervention plans, and documentation. The OTA’s responsibilities include formulating and carrying out daily intervention plans and documentation. OTAs also assist with or conduct portions of the pediatric medical-based screening and contribute to the pediatric medical-based evaluation.


After receiving a referral from a physician, medical-based pediatric screening and evaluation are usually completed by the occupational therapist within 24 hours and 72 hours, respectively. The screening and evaluation are conducted by means of formal and informal measurement tools as well as through clinical and parental observations. Throughout the assessment process, a medical-based OT practitioner should be aware that certain factors, such as time, the severity of the illness, and the overall stress associated with being in a hospital environment, may mask a child’s true abilities in a given performance area.


The deficits that are identified during screening and evaluation are addressed in a medical intervention plan. An occupational therapist formulates the long-term goals and short-term objectives that will guide the intervention plan. The medical intervention plan is developed either solely by an occupational therapist or jointly by an occupational therapist and an OTA. The medical intervention plan is an outline of the activities and tasks that are used during treatment sessions.


The OT practitioner initiates OT interventions only when the medical stability of a child has been determined. Medical stability is used to determine the manner in which services are provided and how often they are provided. The goals of the intervention plan should be gradually integrated into the child’s environment. Intervention strategies are designed to increase the child’s functional level.

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Jul 24, 2016 | Posted by in PEDIATRICS | Comments Off on Medical system

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