Pregnancy and Motherhood in the Narratives of Women with HIV Infection Living in the Metropolitan Area of Buenos Aires, Argentina



Pranee Liamputtong (ed.)Women, Motherhood and Living with HIV/AIDS2013A Cross-Cultural Perspective10.1007/978-94-007-5887-2_3© Springer Science+Business Media Dordrecht 2013


3. Pregnancy and Motherhood in the Narratives of Women with HIV Infection Living in the Metropolitan Area of Buenos Aires, Argentina



Mónica Laura Gogna , Silvia Beatriz Fernández , Paula di Corrado  and María Julieta Obiols 


(1)
Interdisciplinary Institute, Av. Las Heras 3231, 12 A, CP 1425 Ciudad Autónoma de Buenos Aires, Argentina

(2)
National University of Avellaneda (UNDAV), Honorio Pueyrredón 765-P.B.C, CP 1405 Ciudad Autónoma de Buenos Aires, Argentina

(3)
Former staff at CNRS, Francia 2297, CP 1602 Florida – Buenos Aires, Argentina

(4)
Psychology School, University of Buenos Aires and CONICET (National Scientific and Technological Research Council), Zapiola 1340 Departamento 7, CP 1426 Buenos Aires, Argentina

 



 

Mónica Laura Gogna (Corresponding author)



 

Silvia Beatriz Fernández



 

Paula di Corrado



 

María Julieta Obiols



Abstract

This chapter discusses qualitative data from a broader research project supported by WHO that aims at identifying the obstacles to the provision of more integral health care to women living with HIV in the metropolitan area of Buenos Aires. The first phase of the study explored women’s experiences, needs, and expectations regarding pregnancy, vertical transmission prevention, condom use, and reproductive intentions through a survey applied to women attending CNRS (National Reference Center for AIDS) for their viral load or CD4 tests or for their babies’ diagnosis (N = 169).

Based on the results of 2009 survey, the authors interviewed a dozen of women taking their babies for lab tests. Interview guidelines focused on time and circumstances when they were notified about their HIV infection; experience in relation to diagnosis, reconstruction of the steps taken since then, and perception of difficulties and facilitators in the care provided by the health services; partner’s role; pregnancy experience; and reproductive intentions.

Findings indicate that getting an HIV-positive result, particularly during pregnancy, is a very difficult situation that awakes strong and contradictory feelings (fear, shame, anger, sorrow). Nevertheless, the fact that an offspring, whether wanted or unexpected, is associated with life counterbalances in some way the feelings elicited by the diagnosis. After the “initial shock,” HIV infection becomes part of women’s life and does not have a unique impact on their sexual and reproductive behavior. Interviewees complied with treatment to prevent vertical transmission as part of their responsibilities to their offspring but tended to postpone their own care. The priority given to children, whether it is that women delay treatment or follow treatment “because of them,” confirms the centrality motherhood has in these women’s lives. Coping with the infection and other adverse situations seemed to have empowered women regarding their contraceptive and reproductive needs and wishes.



1 Introduction


Argentina, a middle-income country located in the Southern Cone of Latin America, has had an HIV/AIDS epidemic for 25 years. As in most Latin American countries, the epidemic is currently of a “concentrated” type. It affects less than 1% of the population (specifically, 0.4% of people over 15 years old), but it goes up to 5% or more in certain subpopulations (5% in commercial sex workers, 12% among men who have sex with men, and 34% in transsexuals) (Ministerio de Salud 2010). In 2008, the annual rate of infection for HIV was 13 per 100,000 inhabitants for the whole country, but it was significantly higher in Buenos Aires city (23.2 per 100,000 inhabitants). Currently, it is estimated that 130,000 individuals live with HIV, out of which only half of them know their condition. Most of the notified cases (69%) are assisted by the public health system1 (Ministerio de Salud 2010).

The progression of the infection via heterosexual sex raised the relative weight and number of women with HIV, with new infections tending toward a smaller male-to-female ratio. In the 2007–2009 period, the male-to-female ratio of new HIV infections was 1.7 males per each woman diagnosed (Ministerio de Salud 2010).

Legislation grants universal access to treatment and highly active antiretroviral therapy (HAART) has been available, but not without difficulties, since 1997. During 2009, 29,886 persons received HAART from the public health sector (Ministerio de Salud 2010).

The country has also adopted protocols to prevent mother-to-child transmission (MTCT) which establish the legal obligation to systematically offer every pregnant woman to undergo voluntary counseling and HIV testing as part of prenatal care. Currently, the prevalence of HIV in pregnant women is 0.32% and up to 1% in some hospitals in the metropolitan area of Buenos Aires (Bianco and Mariño 2010).

The rate of global perinatal transmission in the deliveries of women with HIV performed in Buenos Aires city during the period 2003–2009 was 5.5%.2 The time of diagnosis, in relation to the pregnancy, had a great impact in the transmission rate: 3.1% in women diagnosed during pregnancy, 22.6% in those diagnosed during labor work, and 35.1% in those diagnosed during puerperium. The mother’s level of education was another factor associated to HIV vertical transmission (Coordinación Sida/GCBA 2010).

In Argentina, as elsewhere, the extended use of HAART substantially diminished the morbidity and mortality associated to HIV and transformed it into a chronic pathology. As social representations of AIDS as a synonymous of death gradually began to fade, the personal and family projects of people living with HIV started to emerge or gain visibility (Grimberg 2003; Gianni 2006; Segurado and Paiva 2007; Pecheny et al. 2008).

A quanti-qualitative national study conducted in 2006 showed that parenthood can be a deeply cherished wish for many people living with HIV (Gogna et al. 2009). Data from a probabilistic sample of PLWHA aged 18 or more attending health-care centers for follow-up or treatment showed that women without children are six times more likely than women with children to want to have children. In contrast, men without children are nearly two times more likely than men with children to want to have children. The comparison highlights the centrality of motherhood for women in our country. The study also revealed the unmet need of contraception in this population since half the pregnancies that occurred after HIV diagnosis had been unexpected (Pecheny et al. 2008).

Studies performed in Argentina and Brazil show that women who live with HIV do not talk with the health professionals that assist them about their desire to have children because they fear a negative reaction, nor do they ask about birth control methods because the condom is the only alternative promoted by infectious disease specialists, who usually act as family doctors for the people who live with HIV (Paiva et al. 2002; Oliveira and Junior 2003; Weller et al. 2004; Pecheny et al. 2008).

As Gruskin and colleagues (2007) maintain, the rights as well as the needs and aspirations related to sexual and reproductive health of PLWHA are not different from those that people who do not live with the virus have, although living with the infection causes specific needs and aspirations (see also Chap.​ 2 in this volume). Women with HIV are more exposed to certain issues (for instance, there is evidence of a greater relation between cervical cancer and HIV than in the general population; and risk of mother-child transmission if there is no access to prevention in time and manner; among others). Also, women with HIV may have different expectations and pressures when compared to other women as regards whether they should or should not have children, and both men and women often report feeling pressured (by family, society, health services, and so on) as to the fact that they should not be sexually active, even if they do not have symptoms (Gruskin et al. 2007).

In this chapter, we focus on pregnancy and motherhood in women who live with HIV, an issue that has only recently began to be analyzed in depth in our country (Biagini et al. 2008; García 2009). The findings are part of a larger study (see Sect. 3).


2 Theoretical Framework


According to Greco (2008: 33), the reproductive event falls within the “wide field of women’s health, in which the social discourses regarding maternity, womanhood and the health-disease-medical care process coincide. These discourses, threaded by the crosscutting axis of gender, give the pregnant women’s body a series of meanings which organize her experience and at the same time, transcend it, dehumanizing, tugging or silencing its singularity.” In the social representation, Fernandez (1994) contends, motherhood is seen as the “paradigmatic” function of women and as that which gives them identity and meaning to their lives; see also Chap.​ 1 and other chapters in Part I in this volume.

Some authors (see López 2006; Zamberlin 2005; Biagini et al. 2008; Greco 2008) argue that women from disadvantaged social groups, with few or no options of participation in the public sphere, “choose” to follow the “road of motherhood” – culturally imposed from generation to generation – since it guarantees them a certain social recognition they would not achieve through other means.

However, as Greco herself (2008: 89) points out, the issue of pregnancy, whether planned or unplanned, inevitably leads to the complex issue of the desire to be a mother which cannot be analyzed solely from the sociocultural point of view, seeing it as a gender mandate. It is important to also consider the sociopsychological aspects involved in it. From this point of view, it is important to have in mind that desire is always built in virtue of, and at expense of, a part of unconscious knowledge, that is, to say, unavailable, which is what prevents these women from accounting for their attitudes and behaviors (especially those visualized as contradictory or “illogical”).

The HIV infection and the possibility of avoiding its transmission from mother to child have made a matter which is already difficult to deal with and to understand, even more complex. Research carried out in different contexts indicates that a diagnosis of HIV infection during pregnancy is an experience that causes deep uncertainties and a specific psychological burden (Bennetts et al. 1999; Kwalombota 2002; Nelms 2005; Torres de Carvalho and Piccinini 2006; Gonçalvez and Piccinini 2007; Sanders 2008; García 2009). While some authors emphasize the psychic suffering which these women undergo (Kwalombota 2002), others stress the ways in which the HIV diagnosis increases the medicalization of pregnancy, labor, and puerperium. Thus, for example, Gonçalvez and Piccinini (2007) maintain that apart from the fear of transmitting the virus to the baby and of the usual anxiety pregnancy elicits, women must submit themselves to a highly medicalized process in which most of the decisions are out of their control, a situation which has an impact at a subjective level. García (2009: 257), in turn, points out that the body “becomes -both for the medical intervention and for women themselves- to some extent split, separated from their own histories and feelings. It becomes a means that, as mothers-to-be, they must make available for studies and therapeutic practises in order to protect the child they are expecting.”

Regarding motherhood, a meta-analysis conducted by Sandelowski and Barroso (2003)3 concluded that it entailed work directed toward the illness itself and the social consequences of having HIV infection in the service of two primary goals: (a) the protection of children from HIV infection and HIV-related stigma and (b) the preservation of a positive maternal identity. According to the authors, motherhood both intensified and mitigated the negative physical and social effects of HIV infection. HIV-positive mothers engaged in a distinctive kind of maternal practise to resist forces that disrupted their relationships with and ability to care for their children, as well as their identities as mothers.

Similarly, a qualitative study conducted by Hebling and Hardy (2007), aimed at describing the feelings of a dozen HIV-positive women regarding motherhood, indicated that it was seen as an essential attribute of women and a reason for living. The study also revealed that some women made provisions with their family for the care of their children and that thinking about the possibility of their children becoming orphans made women feel impotent and guilty. Such painful feelings were minimized through mechanisms of defense like compensation, denial, rationalization, and projection.

The contradictions associated to motherhood in women with HIV infection also arise in the study carried out by Long (2009) in South Africa. The psychologist concludes that HIV infection promotes social representations and more specifically prejudices and stigma which associate it with a negative situation while the pregnancy is meant as a positive event that contributes to the complete fulfillment of a woman. Other research carried out in Vietnam maintains that motherhood grants women a certain status, while being childless is stigmatized. At the same time HIV-positive mothers reported feeling like unfit parents, a reflection of negative broader social opinions on HIV and its association with “social evils” (Oosterhoff et al. 2008; see also Chap.​ 14 in this volume).


3 The Study


This chapter discusses findings produced within the framework of a collaborative study between CEDES and CENEP (Center for the Study of State and Society)4 and CENEP (Center for Population Studies),5 supported by WHO. The research has a double purpose: (a) to identify, from the woman’s and health service providers’ point of view, the obstacles to the provision of integral health care to women of reproductive age who live with HIV/Aids and (b) to promote greater interaction between the several health services which provide care to this population (infectology, obstetrics, gynecology, and family planning) in two selected hospitals in Buenos Aires city6 and to document and monitor this experience.

The qualitative analysis presented here is based on 11 semi-structured interviews with women taking their babies to be tested for HIV to CNRS7 during January of 2010. The interviews were performed by the authors and took place in a private room after the blood test to the baby for an accurate diagnosis was performed. As customary, an informed consent was applied. Upon finishing the interviews, counseling was provided to those women who required it, and informative material was provided to all of them. The interviews were recorded (with the women’s prior authorization) and then they were transcribed and coded for their analysis.

The central themes of the interview guideline were the following: basic sociodemographic characteristics; time and circumstances when they were notified about their HIV infection; experience in relation to diagnosis, reconstruction of the steps taken since then, and perception of difficulties and facilitators in the care provided by the health services; partner’s role; pregnancy experience; and reproductive intentions.

In the following sections, the main findings resulting from this qualitative material are shown. Most of the women interviewed had a low education level: only two had graduated from high school. Their ages ranged between 20 and 41 years old, being 29 the average age. Their profile was similar to that of a sample of women we interviewed in 2009 – as a baseline study – who attended the CNRS to perform their viral load tests or to test their babies. Among these last (N  =  44), which made up 26% of the women interviewed (N  =  169), 29 was the average age. Most of them had not gone beyond the elementary education level (N  =  21), a lower number had not finished their high school studies (N  =  15), and only a minority (N  =  8) had graduated from high school or higher level.

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Nov 4, 2016 | Posted by in OBSTETRICS | Comments Off on Pregnancy and Motherhood in the Narratives of Women with HIV Infection Living in the Metropolitan Area of Buenos Aires, Argentina

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