and Daniela Cristina Stefan2
(1)
Université Mohammed VI des Sciences de la Santé Cheikh Khalifa Hospital, Casablanca, Morocco
(2)
South African Medical Research Council, Cape Town, South Africa
Keywords
Nurse educatorPrinciples of nursingPreparation and administration of chemotherapyInfection/hygiene controlTeam – Psychosocial supportNurses play a major role in care of children with cancer and they contribute significantly to the successes of curing the patients in pediatric oncology (Fig. 28.1). In many high income countries, pediatric/hematology oncology nursing is recognized as a subspecialty in the nursing educational system.
Fig. 28.1
Roles of pediatric oncology nurses
In Africa, nursing care is one of the weakest components(links) in the care for children with cancer. Nursing shortage, a lack of and constant rotation to other pediatric or adult wards are all handicaps and their constant mobility and transfer to other children or adults wards is a handicap for appropriate development of care in this setting. In most parts of Africa there are no dedicated education programs in nurses’ schools in hematology and oncology.
The Nurse Educator
Having dedicated nurses for educating children with cancer and their families and training new nurses is one of the strategies that proved to be very efficient in developing countries.
The nurse educator should be an experienced nurse in the pediatric oncology team and who leads the training program. He or she should be in charge of educational program to ensure compliance with all developing compliance with all developing nursing staff’s clinical skills and knowledge.
The nurse educator in high income countries has been a long established advance nursing role. in high income countries has been a long established advanced nursing role.
However despite major progress in the field of nursing and acceptance of the importance of such a nurse educator, most Sub-Saharan countries do not benefit from this form of nursing intervention.
Diagnosis and Treatment Plan
Establishing a good communication with the family and child with cancer is crucial for appropriate care. The objective of the education process is to give the families and children appropriate information in order to ensure that they are well informed about the diagnosis, treatment, and prognostics and achieve their full support and understanding. In many low income settings, where parents and families may not have more than a primary education and little exposure to biomedical health care(as opposed to tradional healing) explaining a childhood cancer diagnosis and treatment can be challenging.
The initial information regarding the diagnosis and the treatment options is the responsibility of the attending physician. However, the nurse should participate in this session by providing more practical details and supplemental information based on their expertise. Also the nurse is part of the team and offers emotional and moral support to the entire family. In Africa, treatment abandonment remains a significant problem as many parents and caregivers do not return with the child for the completion of cancer therapy once the child is diagnosed or the therapy has started.. A good relationship from the beginning between the medical staff and the family is essential in order to establish and inspire the confidence of the family and the child (if old enough) to continue and complete the treatment.
Children and adolescents should be involved in this process according to their maturity. The parents can decide if other family members should be included.
Parent/Patient Education
Patient and parent education is an important component of the medical care. In Africa, it is also a powerful tool to address the abandonment of treatment. Poverty and illiteracy are of great impact in the adherence to treatment. The nurses are usually more efficient in establishing close relationships with the parents. This is because they spend more time together with the patient and the family and may have a good understanding of the familiy’s community.
Patients and families should be informed about the diagnosis of the child, treatment, and follow-up plans.
Role of the Nurse in Organization of Care
Care of children with cancer is complex and requires intervention of various teams and sometimes from professionals in different hospitals. Organizing the care of patient is crucial in order to have good communication between the teams and appropriate planning of care. Nurses play an important role in coordinating multiple professional teams. It is important to ensure appropriate contact with parents and caregivers throughout the duration of child’scare and follow-up.