Child and Family Health Assessment

2 Child and Family Health Assessment



Family-centered, community-based primary care for children is recognized as the best possible practice model for providing health care services to children and their families. The family is the most influential factor in a child’s life (American Academy of Pediatrics [AAP], 2003) and its functioning is totally intertwined with the child’s health and well-being. However, pediatric primary care providers face significant challenges in implementing family-centered care. At minimum, family-centered care is perceived as time consuming. In addition, families are still too often viewed from a pathology-based model borrowed from psychiatry and psychology, and primary care providers often report feeling inadequate to the task of working with the complex and often stressed families they meet in their practices.


Delivery of family-centered care for children requires the provider to shift focus from child-as-the-unit-of-analysis to family-as-the-unit-of-analysis depending on the problem at hand. Although the child’s welfare is ultimately the goal, the family is so integral to a child’s well-being that unless the family is healthy, the child cannot achieve true physical, developmental, and psychological health. Moving from child to family and back again during the assessment process is a complex task but an essential one for providing excellent care.


This chapter presents a child assessment model that integrates some family issues and a family assessment model that is useful when greater focus on the family is needed.


The outline for assessment of children in this chapter is consistent with the organization of the entire text in which development, functional health issues, and diseases are the three domains for pediatric practice and are the major units of this book. Each chapter provides comprehensive coverage of topics that are categorized within one of these domains. Throughout the book, family is considered integral to the child’s life and care. This chapter provides foundations for an integrated assessment of the child, using a family-centered approach.



image Foundations for Child and Family Assessment



Child Health Assessment Foundations


A careful, complete, and thoughtful assessment of the child’s health status is absolutely essential to providing excellent primary health care. This assessment is based on knowledge of child development, family structure and functions, culture, anatomy and physiology, pathophysiology, pharmacology, health care delivery systems, communities, and standards of primary health care for children. The assessment must also be viewed through the lens of the provider’s experience to allow the provider to modify perceptions and validate data on the basis of previous work. When providers analyze patient care situations, they are engaged in critical thinking. This chapter cannot teach critical thinking nor does it teach physical assessment. Rather, it provides frameworks for gathering data to facilitate expert decision-making in areas of pediatric practice. It is assumed that the reader knows how to do a complete physical examination and has some experience working with children and families in health care settings. It is also assumed that clinicians have the requisite knowledge in the foundation areas listed previously.


When analyzing patient problems most providers are comfortable with classification of diseases using categories found in the International Classification of Diseases, edition 9 revised, Clinical Modification (ICD-9-CM) (USDHHS, 2003), including infectious, endocrine, nutritional, metabolic, immunologic, respiratory, and cardiovascular. ICD-10-CM will be effective October 2013. Providers consistently record the disease diagnoses they make for problems in these body systems. One reason that providers use this classification system so easily is that the classic health history format drives diagnostic decisions into these categories. Box 2-1 shows this classic health history format.



The classic medical history is written to expand on the chief complaint, which is generally a physical problem. Issues such as nutrition, development, and activities of daily living are included, primarily as they relate to various diseases. This classification system works well and has generally been taught to physicians, nurse practitioners (NPs), and other providers. The system fails, however, to provide a framework for integrating the daily living (also called functional health patterns) and developmental issues of children into the problem lists and management plans. Without that framework, primary care providers, especially NPs who emphasize developmental and functional health areas of practice, may fail to clearly identify and document many of the unique contributions they make to child health care. Without that identification, the special aspects of their work with patients remain invisible.


An alternate model is offered in this chapter that integrates the nursing and medical aspects of primary care work conceptually and clinically (see discussion of Box 2-3 later). This assessment model (Burns, 1991, 1992a,b) is based on the assumption that patient problems can be grouped into three distinct domains: developmental problems, functional health problems, and diseases (Box 2-2). Although it was originally developed for NPs, the framework is useful to all pediatric health care providers.



BOX 2-2 Suggested Integrated Classification System of Diagnoses for Use by Primary Care Providers




Domain II: Functional Health Diagnoses














Domain III: Pediatric Disease Diagnoses (Diagnoses included are examples, not an exhaustive list)

















Data from Burns C: Development and content validity testing of a comprehensive classification of diagnoses for use by pediatric nurse practitioners, Nurs Diagn 2:93-104, 1991; and Burns C: Development and content validity testing of a comprehensive classification of diagnoses for use by pediatric nurse practitioners, unpublished doctoral dissertation, University of Oregon, Eugene, 1989.



Developmental Problems


This domain includes the long-term issues of development and maturation over the life span. In pediatrics, developmental issues are prominent. The National Survey of Children’s Health estimates that 15.8% of children are at moderate risk for developmental, behavioral, or social delays and another 10.6% are at high risk for similar delays (Child and Adolescent Health Measurement Initiative, 2009). Failing to identify a developmental problem or to plan for its management is as serious as missing diabetes mellitus or a dislocated hip. Physical as well as developmental problems can affect a child’s entire future if not remedied or managed to minimize their effects. Clinicians assess for developmental problems in the areas of gross motor, fine motor, speech and language, cognitive, social/emotional, and adaptive behaviors.


Developmental surveillance is considered integral to every pediatrics visit (AAP, 2006). However, Halfon and colleagues (2004) found that developmental assessments were completed for only 57% of children ages 10 to 35 months. Schonwald and colleagues, in a 2009 article, present a study that demonstrates that developmental screening does not change the length of visits and increases parental reports so that they discussed more developmental concerns and had their questions answered. Significant increases in developmental screening and parent reports of quality of care occurred in practices in which extra education related to development was given to providers and additional systems to promote childhood development were instituted (Margolis et al, 2008; McKay, 2006).


Zero to Three has developed a taxonomy of developmental diagnoses (Zero to Three, 2005), which may be a useful resource for developmental problem diagnoses.





Problem Interactions


The concept of interactions of problems across domains is important to understand. For instance, iron deficiency anemia can be considered a disease if looked at from the effects of lack of iron on heme production, red blood cells, oxygen transport, and cellular metabolism. The clinician can diagnose this disease and prescribe an iron supplement to manage the problem at this physiologic level. However, if the problem is found to be related to a lack of iron in the diet, the provider can choose to intervene at the functional health-nutrition level, call the problem “Nutrition: Less Than Body Requirements for Iron,” and teach the family how to increase the selection of iron-rich foods for the table. Iron deficiency has also been shown to cause developmental delays (Glader, 2007). If a goal for the visit is to provide additional support in the school setting, a developmental problem would be diagnosed.


A particular domain can also serve as the context for the problem in another area. For instance, Down syndrome, a chromosomal disorder, can be the cause or context for a cognitive development problem. If the intervention is for cognition, a developmental problem of cognitive delay is listed. Content issues for which the clinician is planning interventions are the diagnoses. The contextual issues are not the diagnoses.


The most important point to remember is that interventions must be based on or derived from diagnoses. A situation should never arise in which the provider intervenes without explicit reasons for doing so. The reasons are stated as diagnoses, either actual or potential, and enumerated in the problem list. The preventive work (i.e., to avoid potential problems) done by clinicians also needs to be identified. Diagnoses, in addition to interventions, must be recorded. The ICD-9-CM provides the lists of reimbursable diagnoses and the CPT codes provide the therapeutic intervention codes. Some common CPT codes are listed inside the back cover of this book.



Family Assessment Foundations



The Family’s Role in Health Care of Children


However daunting the perceived barriers to family-centered care seem to be, investing in family assessment and management is essential in contemporary pediatric primary care practice. Duffy (1988) wrote that understanding family health promotion begins with understanding family dynamics. Research has repeatedly demonstrated that a mother’s level of education, her beliefs and attitudes about health, and her own health practices have significant influences on the health status of her children. Parental stress and mental health problems such as depression affect health care for children. Nationally, nearly 13% of children live in households with at least one parent experiencing high stress. Children in those families are more likely to seek emergency care for their children rather than using a medical home for care and experience more injuries (Brown and Wissow, 2008; Minkovitz et al, 2005; Phelan et al, 2007; Raphael et al, 2010). Maternal depression in the first year of her infant’s life has been associated with poorer caregiving and resulting poorer language development at 3 years of age (Stein et al, 2008) and maternal depressive symptoms were predictive of asthma symptoms in inner-city African-American families (Otsuki et al, 2010). As fathers become increasingly involved in their children’s health care, questions about relationships between characteristics of fathers and family health behavior are being raised. Fathers, too, need to be involved with the health care of their children. It is not surprising that parents who believe that they can improve their health status by practicing health promotion behaviors tend to raise children who share similar beliefs.


Research has provided definitive evidence that children, from birth through adolescence need nurturing and attention from the significant adults in their lives. These adults most often are the child’s birth or adoptive parents, but they may also be grandparents, extended family members, or foster parents. Evidence is strong that when children are raised without this consistent, affectionate attention and without sensitive interactions with a caring adult, the results can be devastating for both child and society (Kazak et al, 2010). For example, family cohesion, beyond dyadic family relationships, is related to adolescent hostility; the functioning of the family as a whole affects adolescent behavior and emotional health (Richmond and Stocker, 2006). In contrast, when a parent or another significant adult responds consistently and sensitively to a child’s needs, such as a need to play, to eat, to sleep, to be comforted, or to be left alone, the child is likely to grow up competent to initiate and build strong, nurturing relationships. Although inadequate or poor parenting is linked in the literature to factors such as poverty, substance abuse, and minimal education, research suggests that a poor “fit” between a child and a significant adult can occur in any family, including those in which the adults are well educated, socially competent, and economically successful. Issues of family relationships and family disruption are discussed in Chapter 17 more fully.



Family Assessment Basic Elements


Family assessment begins with the assumption that families are central to and inseparable from the health of children. It is based on a family health promotion framework that assumes that the vast majority of family members are competent, want to do what is best for their children, and desire to be active participants in their children’s health care. Family assessment in primary care practice with children requires attention to family structure, family life cycle stage, family functioning, and social network. In other words, a basic family assessment addresses characteristics of the family, transitions that the family is experiencing, how family members interact and get things done, what they believe and value, and how they interact with the community.


It is important to recognize that providers’ own definitions of family and healthy family functioning are culturally and temporally bound, determine who is and who is not family, and can profoundly affect assessment, treatment, and outcomes. Providers might find it useful to periodically examine their own assumptions and beliefs regarding families and use the knowledge gained to foster increased sensitivity and openness to the rich diversity that their clients present.


Legal definitions of family usually address bonds of blood, marriage, and adoption. A significant number of contemporary families do not fit such restrictive definitions. To address this reality, Whall (1986, p 240) defined family as “a self-identified group of two or more individuals whose association is characterized by special terms, who may or may not be related by bloodlines or law, but who function in such a way that they consider themselves to be a family.” Wherever practitioners’ personal definitions might fall on a continuum of inclusiveness, it is imperative that they know and understand the implications of that definition in practice.


Essential components of the assessment of the child’s family are discussed later.





Family Functioning


Healthy family functioning should result in what Terkelsen, in his classic paper, called the “good-enough family” (Terkelsen, 1980). Families have both strengths and limitations, but the majority of families are able to meet most of their members’ needs most of the time. This is a hopeful stance, one that allows for the less than perfect family to feel successful and empowered. Family resilience is a helpful concept referring to healthy family functioning (Benzies and Mychasiuk, 2009).


Characteristics of healthy family functioning have been identified by a number of researchers. Open communication, mutual respect and support, differentiation, shared problem-solving, shared decision-making, flexibility, enhancement of members’ personal growth, sense of play and humor, and a shared value of service to others are some of these assets (Curran, 1983; deChesnay, 1986). The American Academy of Pediatrics (AAP) states that a child will thrive best when cared for by two mutually committed parents who respect and support each other, who have adequate social and financial resources, and who both are actively engaged in the child’s upbringing. Characteristics of the successful family are described by the AAP as being cohesive, enduring, and mutually appreciative. Such families communicate effectively and often, adapt to changing circumstances, spend time together, are committed to the family, and embrace a common religious or spiritual orientation (AAP, 2003).


Protective factors for family resilience include individual, family, and community factors. Some individual factors include internal locus of control, emotional regulation, effective coping skills, and others. Some family factors include structure, stable partner relations, cohesion, social support, and adequate income, while some supportive community factors include community involvement, peer acceptance, supportive mentors, a safe neighborhood; and access to quality school, daycare, and health care (Benzies and Mychasiuk, 2009).





image The Environment for Data Collection




Communication with Children and Families


“Communication is the most common ‘procedure’ in medicine” (Levetown and AAP Committee on Bioethics, 2008, p 1441). In an excellent discussion by these authors, communication is identified as critical to the provision of health care. It must be responsive to the needs of the child and family within the context of their own dynamics. It is essential to diagnosis and successful treatment planning, and results in better patient outcomes including physical and psychosocial benefits, increased patient satisfaction, patient knowledge, adherence, functional status, and adaptation to challenging situations. “Poor communication, on the other hand, can prompt lifelong anger and regret, can result in compromised outcomes for the patient and family, and can have medicolegal consequences for the practitioner” (Levetown and AAP Committee on Bioethics, 2008, p 1441).


The three elements they identify as essential to excellent communication are as follows:



Health care communication is different from normal discourse because very personal issues are discussed—hopes and fears; sexuality; mental health issues; painful issues such as abuse, drug use, school and personal failure; and serious or terminal illness. Communication involves both cognitive and affective elements. When drug use, alcohol consumption, and smoking were addressed with mothers, parent-provider relationships were positively affected (Garg et al, 2010). Similarly, discussion of maternal stress also results in greater maternal satisfaction with care (Brown and Wissow, 2008).


The pediatric health history has several unique aspects. First, the participants in the conversation include the child, caregiver, and provider, more than just the patient and provider as in the adult care model. Second, the topics emphasized vary significantly depending on the child’s developmental stage. Third, the process of communication with the child and the extent to which he or she is involved with health care decisions varies with his or her age. Those readers with an adult health care background need to especially heed these differences.


Families want to be addressed by their last names, shake hands with the provider, and have the provider introduce himself or herself (Amer and Fischer, 2009). For young children, the conversation time gives them the opportunity to become familiar with the examiner and setting, which is essential for cooperation when needed. Remember that young children are learning the “script” for health care visits. The visit should help them learn a script that is understandable and not too stressful. When the script is to be varied (e.g., no immunizations this visit), alert them to the change with cues and explanations for the new experiences of this visit and the likelihood that the new script will be repeated at future visits.


The provider is also observing parent-child interactions during the visit. For example, are the parents responding to their baby? Do the parents contribute to the school-age child’s self-esteem? Cues to mental health problems in any family member or the child should be addressed.


For adolescents, the history can be started with the parents and teen together; however, they then need to separate, with the provider getting information from the parents and the teen independently. Interviewing teens requires patience as they are learning to take responsibility for their own health care. Interactions will change as teens mature developmentally or as the situation is modified.


Data can be collected verbally, through record review, via written forms completed by the family, or through a combination of these methods. It might not be practical for data to be fully collected on the first visit; rather, the collection can be staged according to the visit priorities. When time with patients is limited, it is common to ask new families to come early for their first appointment to complete a written history before meeting the clinician. Notation of any missing data should be made so that further baseline data can be collected at the next visit.


In 2008, more than 23% of children in the U.S. lived in immigrant families. In these families, 81% of children spoke English very well; however, only 37% of their parents spoke English very well (Mather, 2009). Thus, interpreter services must be available if the clinician and family are not fluent in each other’s languages. These services are mandated by law. Use of family members as interpreters is not recommended. Family members may try to protect the patient by hiding important information. Legally, the provider may be at risk if information was not transmitted correctly or completely either to or from the clinician (Lehna, 2005).



image The Database



The Child Health History


It is said that 80% of diagnoses are made on the basis of the history. The physical examination only provides a partial view of the situation as it is at the moment. It is often a cloudy picture because the body frequently responds similarly to different assaults. It is the history of the problem—its onset, duration, progress, associated symptoms, meaning, and effects on daily living—that brings the health care provider to an understanding in sufficient depth to choose appropriate management. Functional health and developmental problems present the same issues for the provider. A thorough, thoughtful history is essential.


The database described in this chapter summarizes the child health history and physical examination and the family assessment. The model presented uses a basic problem-oriented format that begins with subjective data (the history), moves to objective data (the physical examination, laboratory, and test data), then lists the problems by domain (identified through the subjective and objective data), and finally, outlines plans of care, problem by problem. The items listed under each topic are suggestions; they are not required data to obtain from every patient. As children age, the emphasis will change (e.g., less time spent on birth and infancy histories). The history needs to be individualized, considering family, culture, health status, and environment. The complete format should be mastered so that it becomes core to the provider’s approach to all patient situations. If data are omitted, the omissions should be by choice, not by an error committed through haste, distraction, ignorance, or habit. Box 2-3 provides a format for recording the data in summary form.


Jul 24, 2016 | Posted by in PEDIATRICS | Comments Off on Child and Family Health Assessment

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