26 After studying this chapter, the reader will be able to accomplish the following: • Describe terms, concepts, legislation, and trends in the use of assistive technology in pediatric occupational therapy • Demonstrate understanding of specific classes of assistive technology available to children with disabilities • Discuss the role of the occupational therapy assistant as it relates to successful evaluation and implementation of assistive technology services • Describe best practice strategies required for successful evaluation and implementation of assistive technology services • Demonstrate understanding of the characteristics of assistive technology and its relative importance in making assistive technology decisions • Compare and contrast assistive, rehabilitative, educational, and medical technologies • Provide examples of switch technology and the ways it might be used to assist a child in achieving a goal • Describe the characteristics of switches and specific considerations when selecting a switch for an individual user • Describe the ways environmental control units operate and how ECU (environmental control unit) technology might be used for a child with a disability • Discuss the role of simple communication technologies for children unable to communicate verbally Technology continues to influence our lives considerably. We now have a daily dependence on a variety of technologies that include computers, cell phones, and personal digital assistant (PDAs). Each of these technologies has the potential to make our lives a little easier and more comfortable by helping us be more productive and efficient. For people with disabilities, technology is especially important as it can mean the difference between being able to accomplish a task alone and being forced to depend on someone else. In fact, technology has been described as the “great equalizer” for people with disabilities, since it provides an important vehicle for maximizing capability.6,10 The U.S. Congress acknowledged the crucial role of technology in the lives of people with disabilities when, in 1988, it passed Public Law 100-407, titled the Technology-Related Assistance for Individuals with Disabilities Act of 1988.11 In the preamble to PL 100-407, Congress described four major benefits of assistive technology (AT) for individuals with disabilities: (1) greater control over their individual lives, (2) increased participation in their daily lives, (3) more widespread interaction with nondisabled individuals, and (4) the capacity to benefit from opportunities that most people frequently take for granted. The Tech Act, as it is commonly referred to, allocated a considerable amount of dollars to support the efforts of the states to increase the awareness of the benefits of technology for people with disabilities, funding for the provision of AT devices and AT services, the number of personnel trained to provide such services, and coordination among state agencies and public and private entities to deliver AT devices and AT services.7 The formal definition of assistive technology (AT), according to the federal government, is as follows: “Any item, piece of equipment, or product system, whether acquired commercially off the shelf, modified, or customized, that is used to increase or improve functional capabilities of individuals with disabilities.”* The important thing to remember about this definition is the fact that anything that helps a person be more functional is considered AT. The term assistive technology naturally makes one think that AT has to be commercially manufactured and expensive; however, this is not always the case. Also formally defined in the law is the term assistive technology services (AT services). This term includes “any service that directly assists an individual with a disability in the selection, acquisition, or use of an assistive technology device.”** The inclusion of a service component is particularly important to occupational therapy (OT) practitioners, and this suggests that those who framed this legislation realized an important truth: Eequipment alone is not enough; professional services are also required for the evaluation of AT and the training for its use. Why should we consider the use of AT in the care of individuals with disabilities? A brief look at the World Health Organization’s distinction of the terms health condition, activity limitations, and participation restrictions illustrate the importance of AT. Let us say that a child is born without his upper extremities (health condition), and so he is unable to perform basic activities of daily living (activity limitation) (the World Health Organization Web site: http://apps.who.int/classifications/icfbrowser/, accessed September 23, 2009). If this child is prevented from participating in a local drawing class because of this health condition or activity limitation, then his participation has been restricted. AT addresses the health condition aspect of the individual and minimizes activity limitations because when an aid or device that will allow the individual to meet the goal of drawing is identified, he or she can assume his or her role in society (e.g., a young child who wants to draw) and the health condition is thereby minimized. Interdisciplinary teamwork is considered the cornerstone of effective rehabilitation.2 The need for teamwork is particularly crucial as it relates to the use of AT. The disciplines represented as part of the assistive technology team (AT team) may vary according to the needs of the client and health condition or body functions (Box 26-1). For example, a physical therapist provides important information about gross motor strength and function as well as positioning for function and mobility. The occupational therapist gives valuable input relative to fine motor function, participation in activities of daily living (ADLs) and positioning for access. The speech–language pathologist is concerned with overall communication ability as well as specific strengths and abilities related to language comprehension and language expression. The user, and his or her parents, guardians, or caregivers, are always the central members of the team and should be involved in all aspects of equipment decision making and/or implementation. Additional team members could include a rehabilitation engineer charged with designing or fabricating aids or devices, an equipment vendor who provides medical equipment supplies and a teacher concerned with using technology to assist a student in meeting his or her educational potential and achieving educational goals. Regardless of which professionals make up an individual team, it is the responsibility of each AT team to work together to decide what technology will be of benefit to an individual user, how it will be used, how equipment will be maintained, and how the impact of the technology will be measured.4 The term assistive technology is used to describe a broad array of assistive aids and devices that include, but are not limited to, aids for daily living, seating and positioning aids, communication aids and devices, environmental control units, aids for persons with visual impairments, and assistive listening devices. As a group, these technologies share common characteristics, which are important to understand in delivering quality AT services (Table 26-1). First, and most important, is a solid understanding of the distinction between “assistive technology” and rehabilitative, educational, or medical technology.5 The term assistive technology should only be used to refer to aids and devices that are used daily to complete a given task. The terms rehabilitative or educational technology should be used when referring to the use of technology as only one aspect of an overall rehabilitation or education program. Medical technology refers to the use of technology to support or improve life functions. The following case study illustrates why this distinction is so important. TABLE 26-1 Characteristics of Assistive Technology With Definitions and Examples Another characteristic of AT is that it can be categorized as low technology or high technology.5 This distinction is somewhat self-explanatory. Low technology is easy to obtain, easy to use, and of relatively low cost. In contrast, high technology is more difficult to obtain, requires greater skill to use, and is frequently more costly. We consider these factors when weighing options for individual users. For example, if we are working with an individual who we know to be “technophobic,” then we would probably want to keep our AT options toward the low technology end. At the same time, we do not want to make AT decisions simply based on the fact that someone enjoys and is comfortable with technology. This author’s motto is simple: Never buy a Jaguar when a Volkswagen will do! To be safe, we should always make sure that our decisions about technology are based on the goals and abilities of the client.7 The final characteristic of AT that we need to discuss is the distinction between assistive technology tools and assistive technology appliances.5 The term assistive appliance includes any aid or device that provides benefit to the user with little to no training or development of skill. This could include items such as eyeglasses or orthotics. An assistive tool, on the other hand, requires the development of skill in order for it to be of value to the user. Examples of assistive tools include feeding machines, communication aids and devices, and mobility aids. This distinction is especially important when speaking with users and caregivers about their expectations of AT. A good example is the selection of a communication aid or device. Too often, there are misconceptions that if we “just find the right thing,” the user will be able to communicate instantaneously. It is important for everyone to be clear about the fact that any communication aid or device is an assistive tool and, as such, requires a certain degree of training before it can be of benefit to the user. In their book on assistive technology, Jan Galvin and Marcia Scherer describe a number of myths and realities with respect to AT, many of which are important to share before moving forward.7 As already mentioned, AT does not need to be expensive or complicated. A simple pad and pencil can be the perfect communication aid. Moreover, keep in mind that people with the same disability do not necessarily require the same devices. For example, the same wheelchair is not recommended for every person needing one! It is especially important to keep in mind that “assessment,” as it relates to AT, is an ongoing process. It is simply not possible to know everything about an individual user in the course of three or even four encounters. Additionally, as users develop and improve their skills as a result of intervention, reassessment of AT needs is warranted. We will discuss this further when we talk about the assessment process. Lastly, it is important to be open to multiple sources of information when it comes to AT. The field of AT is changing at a remarkably rapid pace, and it is very difficult for any single professional to be familiar with everything that is available. Consequently, consumers, family members and even vendors can provide us with valuable input about appropriate technology for individual users.
Assistive technology
Definitions
Assistive technology team
Characteristics of assistive technology
CHARACTERISTIC
DEFINITION
EXAMPLE
Assistive technology
Technology used daily to improve function
Communication aid
Rehabilitative or educational technology
Technology is only one aspect of rehabilitation or educational program
Software program for teaching ABCs
Medical technology
Technology used to sustain life
Respirator
Low technology
Technology that is easy to obtain and use
Reacher
High technology
Technology that is difficult to obtain and use
Electric feeding machine
Assistive appliance
Aid/device that is beneficial without development of skill
Foot orthotics
Assistive tool
Aid/device that requires development of skill to be useful
Switch-adapted toy
Assistive technology myths and realities
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Assistive technology
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